Rare Diseases

Neurology Now
June-july 2012
Volume 8(3)
p 12
Back to top

I was so intrigued and encouraged by Dr. Robin Brey's request for readers to share their experience with a rare disease (“Not So Rare,” April/May 2012). I am a rehabilitation specialist who works with many patients who have developed arachnoiditis, a pain disorder caused by the inflammation of one of the membranes that surround and protect the nerves of the spinal cord. I am also the parent of a young adult with arachnoiditis. Unfortunately, the condition often remains unrecognized—and patients underserved. Please consider doing an article on it.

—Terri A. Lewis

Back to top