RESOURCE CENTRAL

Neurology Now
September/October 2009
Volume 5(5)
p 37–39
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Cognitive Exercises

My Brain Games, from the MS Technology Collaborative—a partnership of the National MS Society, Bayer, and Microsoft—is a new series of brain fitness games specifically for people with multiple sclerosis (MS). The free online games sharpen players' cognitive skills by testing their processing speed, attention, working memory, and task-switching ability. Players can adjust the difficulty level of each game, as well as customize the text size and colors on the screen to suit their capabilities.

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Stephen S. Kirzinger, M.D., assistant professor in the department of neurology and medical director of the Multiple Sclerosis Center at the University of Louisville Medical School in Louisville, KY, was one of three healthcare professionals who served as an adviser during the game development process. He helped identify the areas of cognitive difficulty for the MS population—primarily problems with attention, organization, problem-solving, and learning and remembering information—and looked at ways that games might test those aspects.

“The goal of the program is to offer MS clients a fun and interactive site where they can test the cognitive abilities and hopefully practice over time,” says Dr. Kirzinger. “We are hopeful that the MyBrainGames will allow individuals to show some rehabilitation over time by increasing their scores. Patients at all stages of the disease potentially could play the games.”

Check out the MyBrainGames at mymsmyway.com/mybraingames .

Here are a handful of other resources for sharpening your cognition:

* Brain fitness Channel from Posit Science: bfc.positscience.com/

* Cogmed Working Memory Training For kids with ADHD: cogmed.com/cogmed/

* HappyNeuron, Inc.: happy-neuron.com/

* My Brain Trainer: mybraintrainer.com/

* Play With Your Mind: PlayWithYourMind.com

Assistance Directory

For a full listing of patient organizations, go to neurologynow.com

HELP FOR ALL NEUROLOGICAL DISORDERS

TheBrainMatters.org

American Academy of Neurology Foundation's patient Web site thebrainmatters.org

American Academy of Neurology Foundation aan.com/go/foundation

1-800-879-1960

National Institute of Neurological Disorders and Stroke

ninds.nih.gov

ALZHEIMER'S DISEASE

Alzheimer's Association alz.org

1-800-272-3900

Alzheimer's Disease Education and Referral Center

alzheimers.org

1-800-438-4380

Alzheimer's Foundation of America

alzfdn.org

1-866-232-8484

AUTISM

Autism Society of America

autism-society.org

1-800-3AUTISM (1-800-328-8476)

Autism Speaks, Inc.

autismspeaks.org

212-252-8584

Global and Regional Asperger Syndrome Partnership

grasp.org

1-888-474-7277

BRAIN TUMOR

American Brain Tumor Association

abta.org

800-886-2282

National Brain Tumor Society

Braintumor.org

1-800-934-2873

CEREBRAL PALSY

United Cerebral Palsy

ucp.org

1-800-872-5827

DYSTONIA

Dystonia Foundation

dystonia-foundation.org

1-800-377-DYST (1-800-377-3978)

Spasmodic Torticollis

spasmodictorticollis.org

1-888-445-4588

EPILEPSY AND SEIZURES

Citizens United for Research in Epilepsy (CURE)

CUREepilepsy.org

312-255-1801

Epilepsy Foundation

epilepsyfoundation.org

1-800-332-1000

HEADACHE/MIGRAINE

National Headache Foundation

headaches.org

1-888-NHF-5552 (1-888-643-5552)

Migraine Research Foundation

migraineresearchfoundation.org

212-249-5402

HUNTINGTON'S DISEASE

Hereditary Disease Foundation

hdfoundation.org , 212-928-2121

Huntington's Disease Society of America

hdsa.org

1-800-345-HDSA (1-800-345-4372)

HYDROCEPHALUS

Hydrocephalus Association

hydroassoc.org , 1-888-598-3789

MULTIPLE SCLEROSIS

MSWorld

msworld.org

Multiple Sclerosis Association of America

msassociation.org , 1-800-532-7667

Multiple Sclerosis Foundation

msfocus.org ; 1-800-225-6495

National Multiple Sclerosis Society

nationalmssociety.org

1-800-FIGHT-MS (1-800-344-4867)

MYASTHENIA GRAVIS

Myasthenia Gravis Foundation of America

myasthenia.org ; 1-800-541-5454

NEUROMUSCULAR DISEASES

ALS Association

alsa.org; 1-800-782-4747

Charcot-Marie-Tooth Association

charcot-marie-tooth.org

610-499-92641-800-606-CMTA (2682)

Kennedy's Disease Association

kennedysdisease.org ; 559-658-5950

Moebius Syndrome Foundation

moebiussyndrome.com

1-660-834-3406

Muscular Dystrophy Association

mda.org

1-800-FIGHT-MD (1-800-344-4863)

Neuropathy Association

neuropathy.org

212-692-0662

Spastic Paraplegia Foundation, Inc.

sp-foundation.org ; 1-877-773-4483

PAIN

American Pain Foundation

painfoundation.org

1-888-615-PAIN (1-888-615-7246)

PARKINSON'S DISEASE & MOVEMENT DISORDERS

American Parkinson Disease Association

apdaparkinson.org

1-800-223-2732

International Essential Tremor Foundation

essentialtremor.org

1-888-387-3667

Lewy Body Dementia Association

lbda.org

Michael J. Fox Foundation for Parkinson's Research

michaeljfox.org

1-800-708-7644

National Ataxia Foundation

ataxia.org

763-553-0020

National Parkinson Foundation

parkinson.org ; 1-800-327-4545

Parkinson's Disease Foundation

pdf.org

1-800-457-6676

Society for Progressive Supranuclear Palsy

curepsp.org

1-800-457-4777

SLEEP

National Sleep Foundation

sleepfoundation.org

202-347-3471

STROKE

American Stroke Association

strokeassociation.org

1-888-4-STROKE (1-888-478-7653)

Give Me Five For Stroke

giveme5forstroke.org

TOURETTE SYNDROME

Tourette Syndrome Association

tsa-usa.org

718-224-2999

TRAUMA

Brain Injury Association of America

biausa.org

1-800-444-6443

Fibromyalgia Resources

If you would like to know more about fibromyalgia, check out these organizations:

American College of Rheumatology

rheumatology.org/public/factsheets/diseases_and_conditions/fibromyalgia.asp

404-633-3777

Arthritis Foundation

ww2.arthritis.org/conditions/DiseaseCenter/Fibromyalgia/fibromyalgia.asp

1-800-283-7800

Fibromyalgia Network

fmnetnews.com

1-800-853-2929

National Fibromyalgia Association

fmaware.org

714-921-0150

National Institute of Arthritis and Musculoskeletal and Skin Diseases

niams.nih.gov/hi/topics/fibromyalgia/fibrofs.htm

877-22-NIAMS (226-4267)

The American Fibromyalgia Syndrome Association, Inc.

afsafund.org

Online Research Study in Migraine

Cure Together (curetogether.org/Migraine ) is a Web site for patients with chronic pain and migraine that helps them track and compare health data and make informed treatment decisions. Co-founded by scientist Alexandra Carmichael, whose mother has lived with migraine for 30 years, the site is currently recruiting participants for an online study on migraine.

Carmichael is looking for 1,500 patients to report data on their symptoms, treatments, and triggers for migraine by checking off and rating symptoms and treatments on the CureTogether site. It should take 15-20 minutes to complete, and statistics for the study are posted live so you will be able to see them after completing your entry.

To learn more about the study or to participate, please visit curetogether.org/migraine or e-mail Alexandra at alexandra@curetogether.com

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