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One of the most overlooked ways of managing a chronic health condition is to become active in the patient community. Getting involved allows you to give and receive valuable support and contribute to finding better treatments for your condition.
✓ SPREAD THE WORD: Sharing what you know about neuropathy and how it impacts your life can enlighten others about the challenges you are experiencing. It can also alert them to symptoms they might not have thought to tell their doctor about.
✓ ATTEND A PATIENT SUPPORT GROUP: Through The Neuropathy Association's national network of over 135 patient support groups across the U.S., patients can reach out to other patients locally to exchange experiences, share tips for coping, and offer mutual support. Visit neuropathy.org for an updated directory.
✓ CONSIDER ENROLLING IN A CLINICAL TRIAL: Go to ninds.nih.gov and search under “neuropathy” for a full list of clinical trials.
This May 11–15, 2009, has been designated “National Neuropathy Week.” If you are a neuropathy patient—or someone who cares for and about a person who is—you can get involved by calling the Neuropathy Association at 212-692-0662 or e-mailing them at firstname.lastname@example.org. For more information on neuropathy, see Resource Central, page 37.