Brain Resources and Information Network (BRAIN)Tel: (800) 352–9424ninds.nih.gov
This Web site of the National Institute of Neurological Disorders and Stroke contains information about the disease and current research.
National Hydrocephalus FoundationTel: 562-924-6666/ 888–857-3434nhfonline.org
This is a nonprofit organization devoted to providing factual information on the causes and treatment of hydrocephalus. The site also provides support group resources (and will assist you in starting a group in your vicinity); a telephone hotline available 24 hours a day, seven days a week; and personal patient stories for inspiration.
Children's Hydrocephalus Support GroupTel: 425 482–0479hydrosupport.org
This support group for parents provides facts about hydrocephalus, an online community forum, and links to related organizations.
Hydrocephalus AssociationTel: 415-732-7040 / 888-598-3789hydroassoc.org
Check out this comprehensive site for patient and caregiver literature, physician and hospital directories, information on scholarships for youngsters, and support groups around the U.S.