Search for specific clinical trials that are underway using the keyword search below.
Patient support groups also offer information about clinical trials.
NINDS Disorders is an index of neurological conditions provided by the National Institute of Neurological Disorders and Stroke. This valuable tool offers detailed descriptions, facts on treatment and prognosis, and patient organization contact information for over 500 identified neurological disorders.
|American Academy of Neurology, American Brain Foundation and Muscular Dystrophy Association Offer New Research Award||07.07.2016|
|Common Drug May Help Treat Effects of Muscle Disease in Boys||05.07.2014|
|White Americans Living Longer with Muscular Dystrophy than African-Americans||09.13.2010|
|Daily Steroids Help Boys with Muscular Dystrophy Walk Longer||05.07.2007|
|New Guideline: Corticosteroids Recommended for Duchenne Muscular Dystrophy||01.10.2005|
View a list of studies currently seeking patients.
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Read additional information from Medline Plus.
Facilitates support groups, publishes a newsletter, organizes conferences and meetings, and awards research grants towards the prevention, cause and treatment of FacioScapuloHumeral muscular dystrophy worldwide. Provides public awareness of FSHD by providing information, referrals, education, and advocacy programs and services. Promotes collaborative research and collects and disseminates research information.
Voluntary health agency that fosters neuromuscular disease research and provides patient care funded almost entirely by individual private contributors. MDA addresses the muscular dystrophies, spinal muscular atrophy, ALS, Charcot-Marie-Tooth disease, myasthenia gravis, Friedreich's ataxia, metabolic diseases of muscle, and inflammatory diseases of muscle, for a total of more than 40 neuromuscular diseases.
Dedicated to ending Duchenne -- to accelerate research, advocate, demand optimal care for all young men, and educate the global community.
The Myotonic Dystrophy Foundation (MDF) is the world’s largest patient organization focused solely on myotonic dystrophy. Their mission, “Care and a Cure,” is to enhance the quality of life of people living with myotonic dystrophy, and advance research focused on treatments and a cure.
Cure CMD’s mission is to bring research, treatments and in the future, a cure for Congenital Muscular Dystrophies. Cure CMD will achieve this mission by working globally together with dedicated parent, government and research advocates. By focusing on this mission, Cure CMD will find and fund high potential research and clinical trials. Success will be determined by clinical applications that improve the lives of those afflicted with CMD’s.
A voluntary health organization that provides support for promising research into finding treatments or a cure for limb-girdle muscular dystrophy, type 2A/calpainopathy (LGMD2A).
The Jain Foundation seeks to expedite development of a cure or therapy for Limb-girdle muscular dystrophy type 2B (LGMD2B) and Miyoshi Myopathy. In addition to educating physicians and patients about LBMD2B/Myoshi, the Foundation maintains a patient registry, offers help with diagnosis (e.g., funding dysferlin gene mutational analysis), funds and monitors research and progress, provides financial support to accelerate clinical trials, and encourages scientific collaboration.