Assistance Directory

Neurology Now
December/January 2013
Volume 9(6)
p 35–37

Abstract

Where to go for more information on the topics discussed in this issue of Neurology Now and for a directory of patient advocacy organizations.

Back to top

For a full listing of patient organizations, go to neurologynow.com

Figure. No caption available.

Click here to enlarge

HELP FOR ALL NEUROLOGIC DISORDERS

American Academy of Neurology Web site aan.com/patients

1-800-879-1960

American Brain Foundation CureBrainDisease.org

1-800-879-1960

CaringBridge® (Free, personalized Web sites to support your health journey) Caringbridge.org

651-452-7940

National Institute of Neurological Disorders and Stroke ninds.nih.gov

Well Spouse Association wellspouse.org

1-800-838-0879

ALZHEIMER'S DISEASE

Alzheimer's Association

alz.org

1-800-272-3900

Alzheimer's Disease Education and Referral Center

alzheimers.org

1-800-438-4380

Alzheimer's Foundation of America

alzfdn.org

1-866-232-8484

Association for Frontotemporal Degeneration

theaftd.org

1-866-507-7222

Cognitive Dynamics

cognitivedynamics.org

205-759-1585

ATAXIA

National Ataxia Foundation

ataxia.org

763-553-0020

AUTISM

Autism Society of America

autism-society.org

1-800-3AUTISM (1-800-328-8476)

Autism Speaks, Inc.

autismspeaks.org

212-252-8584

Global and Regional Asperger Syndrome Partnership

grasp.org

1-888-474-7277

BRAIN TUMOR

American Brain Tumor Association

abta.org

1-800-934-2873

Brain Tumor Foundation

braintumorfoundation.org

212-265-2401

Children's Brain Tumor Foundation

cbtf.org

1-866-228-4673

National Brain Tumor Society

braintumor.org

1-800-934-2873

CEREBRAL PALSY

United Cerebral Palsy

ucp.org

1-800-872-5827

CHIARI MALFORMATION AND SYRINGOMYELIA

American Syringomyelia and Chiari Alliance Project

asap.org

1-903-236-7079

1-800-ASAP-282 (272-7282)

Chiari and Syringomyelia Foundation

csfinfo.org

1-718-966-2593

® for the iPad®

Did you know you can enjoy reading Neurology Now on your iPad?

The app is free, and you can download it today. On your iPad home screen, open the App Store icon and search for “Neurology Now.” Tap “Free” to install the app on your iPad, and then download the issues. Prompts in the app library will let you know when each new issue is available.

Once you have downloaded the issues, tell us what you think of the videos, podcasts, and other special features by emailing neurologynow@lwwny.com

DYSTONIA

American Dystonia Society

dystonia.us

310-237-5478

Dystonia Foundation

dystonia-foundation.org

1-800-377-DYST (1-800-377-3978)

Spasmodic Torticollis

spasmodictorticollis.org

1-888-445-4588

EPILEPSY AND SEIZURES

Citizens United for Research in Epilepsy (CURE)

CUREepilepsy.org

312-255-1801

Epilepsy Foundation

epilepsyfoundation.org

1-800-332-1000

Epilepsy Therapy Project

epilepsy.com/epilepsy_therapy_project

540-687-8077

SeizureTracker

SeizureTracker.com

info@seizuretracker.com

HEADACHE/MIGRAINE

American Headache Society Committee for Headache Education (ACHE)

achenet.org

856-423-0043

Migraine Research Foundation

migraineresearchfoundation.org

212-249-5402

National Headache Foundation

headaches.org

888-NHF-5552 (888-643-5552)

HUNTINGTON'S DISEASE

Hereditary Disease Foundation

hdfoundation.org

212-928-2121

Huntington's Disease Society of America

hdsa.org

1-800-345-HDSA (1-800-345-4372)

HYDROCEPHALUS

Hydrocephalus Association

hydroassoc.org

1-888-598-3789

National Hydrocephalus Foundation

nhfonline.org

1-888-857-3434

MULTIPLE SCLEROSIS

MSWorld

msworld.org

Multiple Sclerosis Association of America

msassociation.org

1-800-532-7667

Multiple Sclerosis Foundation

msfocus.org

1-800-225-6495

Myelin Repair Foundation

myelinrepair.org

408-871-2410

National Multiple Sclerosis Society

nationalmssociety.org

1-800-FIGHT-MS (1-800-344-4867)

MYASTHENIA GRAVIS

Myasthenia Gravis Foundation of America

myasthenia.org

1-800-541-5454

NEUROMUSCULAR DISEASES

ALS Association

alsa.org

1-800-782-4747

Hereditary Neuropathy Foundation

hnf-cure.org

212-722-8396; 855-HELPCMT (435-7268)

Kennedy's Disease Association

kennedysdisease.org

559-658-5950

Moebius Syndrome Foundation

moebiussyndrome.com

1-660-834-3406

Muscular Dystrophy Association

mda.org

1-800-FIGHT-MD (1-800-344-4863)

Neuropathy Association

neuropathy.org

212-692-0662

Spastic Paraplegia Foundation, Inc.

sp-foundation.org

1-877-773-4483

PAIN

American Chronic Pain Association

theacpa.org

1-800-533-3231

PARKINSON'S DISEASE & MOVEMENT DISORDERS

American Parkinson Disease Association

apdaparkinson.org

1-800-223-2732

Foundation for PSP, CBD and Related Brain Diseases

curepsp.org

1-800-457-4777

International Essential Tremor Foundation

essentialtremor.org

1-888-387-3667

The Michael J. Fox Foundation for Parkinson's Research

michaeljfox.org

1-800-708-7644

Lewy Body Dementia Association

lbda.org

404-935-6444

National Parkinson Foundation

parkinson.org

1-800-327-4545

Parkinson's Disease Foundation

pdf.org

1-800-457-6676

The Parkinson's Institute and Clinical Center

thepi.org

1-800-655-2273

Tremor Action Network

tremoraction.org

510-681-6565

RARE DISEASES

Adult Polyglucosan Body Disease Research Foundation

apbdrf.org

1-646-580-5610

The Children's Rare Disease Network

crdnetwork.org

1-949-248-7273

The National Institutes of Health Office of Rare Diseases Research

rarediseases.info.nih.gov

1-301-402-4336

National Organization for Rare Disorders

rarediseases.org

1-203-744-0100

1-800-999-NORD (6673)

SLEEP

National Sleep Foundation

sleepfoundation.org

703-243-1697

STROKE

American Stroke Association: A Division of American Heart Association

strokeassociation.org

1-888-4STROKE (478-7653)

National Aphasia Association

aphasia.org

1-800-922-4622

National Stroke Association

stroke.org

1-800-STROKES (787-6537)

TOURETTE SYNDROME

Tourette Syndrome Association

tsa-usa.org

718-224-2999

TRAUMA

Brain Injury Association of America

biausa.org

1-800-444-6443

TRIGEMINAL NEURALGIA

Facial Pain Association

fpa-support.org

1-800-923-3608

Living with TN

livingwithtn.org

Find a Neurologist

* You can find an American Academy of Neurology member neurologist in your area with the “Find a Neurologist” online tool. Go to patients.aan.com/findaneurologist and fill in your city, state/province, and/or country. If you are looking for contact information for a specific neurologist, you can enter the last name along with the location.

Back to top