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Assistance Directory
Neurology Now
August-september 2012
Volume 8(4)
p 49–51
Abstract
Where to go for more information on the topics discussed in this issue of Neurology Now and for a directory of patient advocacy organizations.
For a full listing of patient organizations, go to neurologynow.com
HELP FOR ALL NEUROLOGIC DISORDERS
American Academy of Neurology Web site
aan.com/patients
1-800-879-1960
American Brain Foundation
CureBrainDisease.org
1-800-879-1960
CaringBridge®
(Free, personalized Web sites to support your health journey)
Caringbridge.org
651-452-7940
National Institute of Neurological Disorders and Stroke
ninds.nih.gov
Well Spouse Association
wellspouse.org
1-800-838-0879
ALZHEIMER'S DISEASE
Alzheimer's Association
alz.org
1-800-272-3900
Alzheimer's Disease Education and Referral Center
alzheimers.org
1-800-438-4380
Alzheimer's Foundation of America
alzfdn.org
1-866-232-8484
Association for Frontotemporal Degeneration
theaftd.org
1-866-507-7222
Cognitive Dynamics
cognitivedynamics.org
205-759-1585
ATAXIA
National Ataxia Foundation
ataxia.org
763-553-0020
AUTISM
Autism Society of America
autism-society.org
1-800-3AUTISM (1-800-328-8476)
Autism Speaks, Inc.
autismspeaks.org
212-252-8584
Global and Regional Asperger Syndrome Partnership
grasp.org
1-888-474-7277
BRAIN TUMOR
American Brain Tumor Association
abta.org
1-800-934-2873
National Brain Tumor Society
braintumor.org
1-800-934-2873
CEREBRAL PALSY
United Cerebral Palsy
ucp.org
1-800-872-5827
CHIARI MALFORMATION AND SYRINGOMY ELIA
American Syringomyelia and Chiari Alliance Project
asap.org
1-903-236-7079
1-800-ASAP-282 (272-7282)
Chiari and Syringomyelia Foundation
csfinfo.org
1-718-966-2593
DYSTONIA
American Dystonia Society
310-237-5478
dystonia.us
Dystonia Foundation
dystonia-foundation.org
1-800-377-DYST (1-800-377-3978)
Spasmodic Torticollis
spasmodictorticollis.org
1-888-445-4588
EPILEPSY AND SEIZURES
Citizens United for Research in Epilepsy (CURE)
CUREepilepsy.org ; 312-255-1801
Epilepsy Foundation
epilepsyfoundation.org
1-800-332-1000
Epilepsy Therapy Project
epilepsy.com/epilepsy_therapy_project
540-687-8077
HEADACHE/MIGRAINE
American Headache Society Committee for Headache Education (ACHE)
achenet.org
856-423-0043
Migraine Research Foundation
migraineresearchfoundation.org
212-249-5402
National Headache Foundation
headaches.org
888-NHF-5552 (888-643-5552)
HUNTINGTON'S DISEASE
Hereditary Disease Foundation
hdfoundation.org
212-928-2121
Huntington's Disease Society of America
hdsa.org
1-800-345-HDSA (1-800-345-4372)
INFECTIOUS DISEASE
Encephalitis Global
encephalitisglobal.org
MULTIPLE SCLEROSIS
MSFriends
msfriends.org
1-877-MSFRIENDS
MSWorld
msworld.org
Multiple Sclerosis Association of America
msassociation.org ; 1-800-532-7667
Multiple Sclerosis Foundation
msfocus.org ; 1-800-225-6495
National Multiple Sclerosis Society
nationalmssociety.org
1-800-FIGHT-MS (1-800-344-4867)
MYASTHENIA GRAVIS
Myasthenia Gravis Alliance
MGdirect.org
1-800-643-0808
Myasthenia Gravis Foundation of America
myasthenia.org
1-800-541-5454
NEUROMUSCULAR DISEASES
ALS Association
alsa.org
1-800-782-4747
Charcot-Marie-Tooth Association
charcot-marie-tooth.org
610-499-9264
1-800-606-CMTA (2682)
Kennedy's Disease Association
kennedysdisease.org
559-658-5950
Moebius Syndrome Foundation
moebiussyndrome.com
1-660-834-3406
Muscular Dystrophy Association
mda.org
1-800-FIGHT-MD (1-800-344-4863)
Neuropathy Association
neuropathy.org
212-692-0662
Spastic Paraplegia Foundation, Inc.
sp-foundation.org
1-877-773-4483
PAIN
American Pain Foundation
painfoundation.org
1-888-615-PAIN (7246)
PARKINSON'S DISEASE & MOVEMENT DISORDERS
American Parkinson Disease Association
apdaparkinson.org
1-800-223-2732
Foundation for PSP, CBD and Related Brain Diseases
curepsp.org
1-800-457-4777
International Essential Tremor Foundation
essentialtremor.org
1-888-387-3667
The Michael J. Fox Foundation for Parkinson's Research
michaeljfox.org
1-800-708-7644
Lewy Body Dementia Association
lbda.org
404-935-6444
National Parkinson Foundation
parkinson.org
1-800-327-4545
Parkinson's Disease Foundation
pdf.org
1-800-457-6676
Tremor Action Network
tremoraction.org
510-681-6565
WE MOVE
wemove.org
212-875-8312
SLEEP
National Sleep Foundation
sleepfoundation.org
703-243-1697
STROKE
American Stroke Association
strokeassociation.org
1-888-4ST ROKE (478-7653)
National Aphasia Association
aphasia.org
1-800-922-4622
National Stroke Association
stroke.org
1-800-ST ROKES (787-6537)
TOURETTE SYNDROME
Tourette Syndrome Association
tsa-usa.org
718-224-2999
TRANSVERSE MYELITIS
International Disability Coalition
disabilitycoalition.org
Transverse Myelitis Network
transversemyelitis.ning.com
Transverse Myelitis Association
Myelitis.org
614-766-1806
TRIGEMINAL NEURALGIA
The Facial Pain Association
fpa-support.org
1-800-923-3608
Living with TN
livingwithtn.org
TRAUMA
Brain Injury Association of America
biausa.org
1-800-444-6443
Brain Trauma Foundation
braintrauma.org
1-212-772-0608