Assistance Directory

Neurology Now
December/January 2011
Volume 7(6)
p 37–39
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For a full listing of patient organizations, go to neurologynow.com

HELP FOR ALL NEUROLOGIC DISORDERS

American Academy of Neurology Web site

aan.com/patients ; 1-800-879-1960

CaringBridge® (free, personalized Web sites to support your health journey)

Caringbridge.org ; 651-452-7940

National Institute of Neurological Disorders and Stroke

ninds.nih.gov

Well Spouse Association

wellspouse.org ; 1-800-838-0879

ALZHEIMER'S DISEASE

Alzheimer's Association

alz.org ; 1-800-272-3900

Alzheimer's Disease Education and Referral Center

alzheimers.org ; 1-800-438-4380

Alzheimer's Foundation of America

alzfdn.org ; 1-866-232-8484

Association for Frontotemporal Dementias

theaftd.org ; 1-866-507-7222

AUTISM

Autism Society of America

autism-society.org ; 1-800-3AUTISM (1-800-328-8476)

Autism Speaks, Inc.

autismspeaks.org ; 212-252-8584

Global and Regional Asperger Syndrome Partnership

grasp.org ; 1-888-474-7277

CEREBRAL PALSY

United Cerebral Palsy

ucp.org ; 1-800-872-5827

DEPRESSION AND MENTAL DISORDERS

National Alliance on Mental Illness

nami.org 1-800-950-NAMI (6264)

DYSTONIA

American Dystonia Society

310-237-5478; dystonia.us

Dystonia Foundation

dystonia-foundation.org ; 1-800-377-DYST (1-800-377-3978)

Spasmodic Torticollis

spasmodictorticollis.org ; 1-888-445-4588

EPILEPSY AND SEIZURES

Citizens United for Research in Epilepsy (CURE)

CUREepilepsy.org ; 312-255-1801

Epilepsy Foundation

epilepsyfoundation.org ; 1-800-332-1000

Epilepsy Therapy Project

epilepsy.com/epilepsy_therapy_project ; 540-687-8077

SeizureTracker

SeizureTracker.com ; info@seizuretracker.com

HEADACHE/MIGRAINE

American Headache Society Committee for Headache Education (ACHE)

achenet.org ; 856-423-0043

Migraine Research Foundation

migraineresearchfoundation.org ; 212-249-5402

National Headache Foundation

headaches.org ; 888-NHF-5552 (888-643-5552)

HUNTINGTON'S DISEASE

Hereditary Disease Foundation

hdfoundation.org ; 212-928-2121

Huntington's Disease Society of America

hdsa.org ; 1-800-345-HDSA (1-800-345-4372)

HYDROCEPHALUS

Hydrocephalus Association

hydroassoc.org ; 1-888-598-3789

National Hydrocephalus Foundation

nhfonline.org ; 1-888-857-3434

INFECTIOUS DISEASE

Encephalitis Global

encephalitisglobal.org

National Meningitis Association

nmaus.org ; 866-FONE-NMA (366-3662)

MULTIPLE SCLEROSIS

MSFriends

msfriends.org ; 1-877-MSFRIENDS

MSWorld

msworld.org

Multiple Sclerosis Association of America

msassociation.org ; 1-800-532-7667

Multiple Sclerosis Foundation

msfocus.org ; 1-800-225-6495

National Multiple Sclerosis Society

nationalmssociety.org ; 1-800-FIGHT-MS (1-800-344-4867)

MYASTHENIA GRAVIS

Myasthenia Gravis Foundation of Greater NY Inc.

Myasthenia Gravis Alliance

MGdirect.org ; 1-800-643-0808

Myasthenia Gravis Foundation of America

myasthenia.org ; 1-800-541-5454

NEUROMUSCULAR DISEASES

ALS Association

alsa.org ; 1-800-782-4747

Charcot-Marie-Tooth Association

charcot-marie-tooth.org ; 610-499-9264; 1-800-606-CMTA (2682)

Kennedy's Disease Association

kennedysdisease.org ; 559-658-5950

Moebius Syndrome Foundation

moebiussyndrome.com ; 1-660-834-3406

Muscular Dystrophy Association

mda.org ; 1-800-FIGHT-MD (1-800-344-4863)

Neuropathy Association

neuropathy.org ; 212-692-0662

Spastic Paraplegia Foundation, Inc.

sp-foundation.org ; 1-877-773-4483

PARKINSON'S DISEASE & MOVEMENT DISORDERS

American Parkinson Disease Association

apdaparkinson.org 1-800-223-2732

Foundation for PSP, CBD and Related Brain Diseases

curepsp.org ; 1-800-457-4777

International Essential Tremor Foundation

essentialtremor.org ; 1-888-387-3667

Michael J. Fox Foundation for Parkinson's Research

michaeljfox.org ; 1-800-708-7644

Lewy Body Dementia Association

lbda.org ; 404-935-6444

National Ataxia Foundation

ataxia.org ; 763-553-0020

National Parkinson Foundation

parkinson.org ; 1-800-327-4545

Parkinson's Disease Foundation

pdf.org ; 1-800-457-6676

The Parkinson's Institute and Clinical Center

thepi.org ; 1-800-655-2273

Tremor Action Network

tremoraction.org ; 510-681-6565

SLEEP

National Sleep Foundation

sleepfoundation.org ; 202-347-3471

STROKE

American Stroke Association: A Division of American Heart Association

strokeassociation.org ; 1-888-4STROKE (478-7653)

National Stroke Association

stroke.org ; 1-800-STROKES (787-6537)

TOURETTE SYNDROME

Tourette Syndrome Association

tsa-urs.org ; 718-224-2999

TRANSVERSE MY ELITIS

International Disability Coalition

disabilitycoalition.org

Transverse Myelitis Network

transversemyelitis.ning.com

TRAUMA

Brain Injury Association of America

biausa.org ; 1-800-444-6443

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