FIGURE. CHRISTOPHER BARR
Outline
Links
RESOURCE CENTRAL
Neurology Now
May/June 2010
Volume 6(3)
p 37–39
Migraine Resources and Research
The Migraine Research Foundation provides funding to researchers who are studying the causes and treatments of migraines. President Cathy Glaser founded the non-profit five years ago with her husband, Stephen Semlitz, after watching their daughter Samantha cope with debilitating migraines, which began when she was just 3 years old. The Glasers hope to redress the lack of funding for migraine research.
“I believe we will see individualized migraine medications available in the future,” Glaser says. Her foundation is currently funding research exploring genetic factors for cardiovascular risk in women with migraines and the development of improved preventive migraine treatments.
The Foundation offers a Facebook support group for migraine sufferers, a list of doctors certified in headache medicine, and a list of headache centers for both adults and children. Visit migraineresearchfoundation.org .
Other organizations that provide support for people with migraine and other headaches include:
American Headache Society Committee for Headache Education (ACHE) achenet.org 856-423-0043
American Pain Foundation painfoundation.org 888-615-PAIN (7246)
National Headache Foundation headaches.org 312-274-2650 or 888-NHF-5552 (643–5552)
For More on Migraine
▸ patients.aan.com (click on “migraine” and “headache” on the list of conditions.)
▸ Migraine and Other Headaches, by William B. Young, M.D., and Stephen D. Silberstein, M.D (ISBN: 978-1-932603-14-9; published 2006; 256 pages; $19.95), from the American Academy of Neurology (AAN) and published by Demos Health, can be ordered at aan.com/store or purchased from Barnes & Noble, Borders, Amazon, or your local independent bookseller.
▸ “Migraine frequency and risk of cardiovascular disease in women,” by Eve Klein, M.D. and David Spencer, M.D. This “Patient Page” of the AAN's journal Neurology, originally published in August 2009, is available at tinyurl.com/http-patientpages-com .
Assistance Directory
For a full listing of patient organizations, go to neurologynow.com
HELP FOR ALL NEUROLOGICAL DISORDERS
American Academy of Neurology Foundation aan.com/patients
AAN Website (For doctors, patients, and caregivers) aan.com
National Institute of Neurological Disorders and Stroke ninds.nih.gov
Well Spouse Association wellspouse.org 1-800-838-0879
ALZHEIMER'S DISEASE
Alzheimer's Association alz.org 1-800-272-3900
Alzheimer's Disease Education and Referral Center alzheimers.org 1-800-438-4380
Alzheimer's Foundation of America alzfdn.org 1-866-232-8484
Association for Frontotemporal Dementias FTD-Picks.org 1-866-507-7222
AUTISM
Autism Society of America autism-society.org 1-800-3AUTISM (1-800-328-8476)
Autism Speaks, Inc. autismspeaks.org 212-252-8584
Global and Regional Asperger Syndrome Partnership grasp.org 1-888-474-7277
BRAIN TUMOR
American Brain Tumor Association abta.org 1-800-886-2282
National Brain Tumor Society Braintumor.org 1-800-934-2873
CEREBRAL PALSY
United Cerebral Palsy ucp.org 1-800-872-5827
DYSTONIA
Dystonia Foundation dystonia-foundation.org 1-800-377-DYST (1-800-377-3978)
Spasmodic Torticollis spasmodictorticollis.org 1-888-445-4588
EPILEPSY AND SEIZURES
Citizens United for Research in Epilepsy (CURE) CUREepilepsy.org 312-255-1801
Epilepsy Foundation epilepsyfoundation.org 1-800-332-1000
HUNTINGTON'S DISEASE
Hereditary Disease Foundation hdfoundation.org 212-928-2121
Huntington's Disease Society of America hdsa.org 1-800-345-HDSA (1-800-345-4372)
HYDROCEPHALUS
Hydrocephalus Association hydroassoc.org ; 1-888-598-3789
National Hydrocephalus Foundation nhfonline.org 1-888-857-3434
MULTIPLE SCLEROSIS
MSFriends msfriends.org 1-877-MSFRIENDS
MSWorld msworld.org
Multiple Sclerosis Association of America msassociation.org , 1-800-532-7667
Multiple Sclerosis Foundation msfocus.org 1-800-225-6495
National Multiple Sclerosis Society nationalmssociety.org 1-800-FIGHT-MS (1-800-344-4867)
MYASTHENIA GRAVIS
Myasthenia Gravis Foundation of America myasthenia.org 1-800-541-5454
NEUROMUSCULAR DISEASES
ALS Association alsa.org 1-800-782-4747
Charcot-Marie-Tooth Association charcot-marie-tooth.org 610-499-92641-800-606-CMTA (2682)
Kennedy's Disease Association kennedysdisease.org 559-658-5950
Moebius Syndrome Foundation moebiussyndrome.com 1-660-834-3406
Muscular Dystrophy Association mda.org 1-800-FIGHT-MD (1-800-344-4863)
Neuropathy Association neuropathy.org ; 212-692-0662
Spastic Paraplegia Foundation, Inc. sp-foundation.org ; 1-877-773-4483
PARKINSON'S DISEASE & MOVEMENT DISORDERS
American Parkinson Disease Association apdaparkinson.org 1-800-223-2732
International Essential Tremor Foundation essentialtremor.org 1-888-387-3667
Lewy Body Dementia Association lbda.org
Michael J. Fox Foundation for Parkinson's Research michaeljfox.org ; 1-800-708-7644
National Ataxia Foundation ataxia.org 763-553-0020
National Parkinson Foundation parkinson.org 1-800-327-4545
Parkinson's Disease Foundation pdf.org 1-800-457-6676
Society for Progressive Supranuclear Palsy curepsp.org 1-800-457-4777
SLEEP
National Sleep Foundation sleepfoundation.org 202-347-3471
TOURETTE SYNDROME
Tourette Syndrome Association tsa-usa.org 718-224-2999
TRAUMA
Brain Injury Association of America biausa.org 1-800-444-6443
Stroke Organizations and Resources
ORGANIZATIONS:
National Aphasia Association aphasia.org 212-267-2814 or 800-922-4NAA (4622)
American Stroke Association: A Division of American Heart Association strokeassociation.org 1-888-4STROKE (478-7653)
Brain Aneurysm Foundation bafound.org 781-826-5556 or 888-BRAIN02 (272-4602)
Brain Attack Coalition stroke-site.org 301-496-5751
National Stroke Association stroke.org 303-649-9299 or 800-STROKES (787-6537)
Children's Hemiplegia and Stroke Assoc. (CHASA) chasa.org 817-492-4325
Hazel K. Goddess Fund for Stroke Research in Women thegoddessfund.org 212-713-6789
WEB SITES, BOOKS, AND ARTICLES:
▸ patients.aan.com (click on “stroke” on the list of conditions)
▸ Stroke, by Louis R. Caplan, M.D. (ISBN: 978–1932603149; 2005; 256 pages; $19.95). Available at aan.com/store and other online and retail booksellers.