Figure. HOLGER WINKLER/CORBIS
Outline
Links
RESOURCE CENTRAL
Neurology Now
March/April 2010
Volume 6(2)
p 36–38
Good Night, and Good Luck
For more information on sleep and insomnia, check out these resources:
American Board of Sleep Medicine absm.org/BSMSpecialists.htm Go here for a list of certified behavioral sleep medicine specialists.
American Academy of Sleep Medicine aasmnet.org The Web site of this professional organization includes information for patients, a list of sleep centers, and more.
National Sleep Foundation sleepfoundation.org . This site provides a comprehensive look at sleep and sleep disorders.
Neurology Now neurologynow.com
For articles that we have published on this topic, go to our Web site and search for “sleep” and “insomnia.”
What Does Neuropathy Mean to You?
Upwards of 20 million have some form of peripheral neuropathy, but many people know very little about this pervasive disease. Everyone in the neuropathy community—patients, family members, friends, health care providers, professionals—must vocalize the impact of this underappreciated and often misunderstood illness.
Figure. No caption available.
In observance of National Neuropathy Week, which takes place on May 17–21, 2010, the Neuropathy Association asked various community members to describe what neuropathy means to them:
OLIVIA WOLF (patient): “It took me a few years, but getting to the right diagnosis, finding a team of health care providers who specialized in neuropathy and my co-existing ailments, and speaking up about my neuropathy symptoms has helped me get back my life.”
THOMAS H. BRANNAGAN, III, M.D., (associate professor of clinical neurology and director, Neuropathy Association's Center of Excellence at Columbia University Medical Center): “The burden of neuropathy on the patients and their lives is immeasurable, and the treatment options few. I primarily see people with neuropathy and, like many of my peers, continuously look for ways to give them a chance to take back control of their lives by effectively managing their symptoms.”
DENNIS PAUL, PH.D. (researcher, Louisiana State University Health Sciences Center): “My colleagues often ask me why I study the pain associated with neuropathy. If you've ever known someone who has constant, debilitating pain, you wouldn't have to ask that question.”
For more information, visit neuropathy.org .
Assistance Directory
For a full listing of patient organizations, go to neurologynow.com
HELP FOR ALL NEUROLOGICAL DISORDERS
American Academy of Neurology Foundation aan.com/go/foundation 1-800-879-1960
AAN Website (For doctors and patients) AAN.com
National Institute of Neurological Disorders and Stroke ninds.nih.gov
Well Spouse Association wellspouse.org 1-800-838-0879
ALZHEIMER'S DISEASE
Alzheimer's Association alz.org 1-800-272-3900
Alzheimer's Disease Education and Referral Center alzheimers.org 1-800-438-4380
Alzheimer's Foundation of America alzfdn.org 1-866-232-8484
Association for Frontotemporal Dementias FTD-Picks.org 1-866-507-7222
AUTISM
Autism Society of America autism-society.org 1-800-3AUTISM (1-800-328-8476)
Autism Speaks, Inc. autismspeaks.org 212-252-8584
Global and Regional Asperger Syndrome Partnership grasp.org 1-888-474-7277
BRAIN TUMOR
American Brain Tumor Association abta.org 1-800-886-2282
National Brain Tumor Society Braintumor.org 1-800-934-2873
CEREBRAL PALSY
United Cerebral Palsy ucp.org 1-800-872-5827
DYSTONIA
Dystonia Foundation dystonia-foundation.org 1-800-377-DYST (1-800-377-3978)
Spasmodic Torticollis spasmodictorticollis.org 1-888-445-4588
EPILEPSY AND SEIZURES
Citizens United for Research in Epilepsy (CURE) CUREepilepsy.org 312-255-1801
Epilepsy Foundation epilepsyfoundation.org 1-800-332-1000
HEADACHE/MIGRAINE
National Headache Foundation headaches.org 1-888-NHF-5552 (1-888-643-5552)
Migraine Research Foundation migraineresearchfoundation.org 212-249-5402
HUNTINGTON'S DISEASE
Hereditary Disease Foundation hdfoundation.org 212-928-2121
Huntington's Disease Society of America hdsa.org 1-800-345-HDSA (1-800-345-4372)
HYDROCEPHALUS
Hydrocephalus Association hydroassoc.org ; 1-888-598-3789
National Hydrocephalus Foundation nhfonline.org 1-888-857-3434
MULTIPLE SCLEROSIS
MSFriends msfriends.org 1-877-MSFRIENDS
MSWorld msworld.org
Multiple Sclerosis Association of America msassociation.org , 1-800-532-7667
Multiple Sclerosis Foundation msfocus.org 1-800-225-6495
National Multiple Sclerosis Society nationalmssociety.org 1-800-FIGHT-MS (1-800-344-4867)
MYASTHENIA GRAVIS
Myasthenia Gravis Foundation of America myasthenia.org ; 1-800-541-5454
NEUROMUSCULAR DISEASES
ALS Association alsa.org 1-800-782-4747
Charcot-Marie-Tooth Association charcot-marie-tooth.org 610-499-92641-800-606-CMTA (2682)
Kennedy's Disease Association kennedysdisease.org 559-658-5950
Moebius Syndrome Foundation moebiussyndrome.com 1-660-834-3406
Muscular Dystrophy Association mda.org 1-800-FIGHT-MD (1-800-344-4863)
Neuropathy Association neuropathy.org ; 212-692-0662
Spastic Paraplegia Foundation, Inc. sp-foundation.org ; 1-877-773-4483
PAIN
American Pain Foundation painfoundation.org 1-888-615-PAIN (1-888-615-7246)
PARKINSON'S DISEASE & MOVEMENT DISORDERS
American Parkinson Disease Association apdaparkinson.org 1-800-223-2732
International Essential Tremor Foundation essentialtremor.org 1-888-387-3667
Lewy Body Dementia Association lbda.org
Michael J. Fox Foundation for Parkinson's Research michaeljfox.org ; 1-800-708-7644
National Ataxia Foundation ataxia.org ; 763-553-0020
National Parkinson Foundation parkinson.org ; 1-800-327-4545
Parkinson's Disease Foundation pdf.org 1-800-457-6676
Society for Progressive Supranuclear Palsy curepsp.org 1-800-457-4777
SLEEP
National Sleep Foundation sleepfoundation.org 202-347-3471
STROKE
American Stroke Association strokeassociation.org 1-888-4-STROKE (1-888-478-7653)
National Stroke Association stroke.org 1-800-787-6537
TOURETTE SYNDROME
Tourette Syndrome Association tsa-usa.org 718-224-2999
TRAUMA
Brain Injury Association of America biausa.org 1-800-444-6443
Books About the Neuroscience of Learning
▸ How Your Child Learns Best: Brain-Based Ways to Ignite Learning and Increase School Success. Judy Willis, M.D., M.Ed. Foreword by Goldie Hawn (Sourcebooks, 2008).
▸ In Search of Memory: The Emergence of a New Science of Mind. Eric Kandel, M.D. (Norton, 2006).
▸ Think Smart: A Neuroscientist's Prescription for Improving Your Brain's Performance. Richard Restak, M.D. (Riverhead, 2009).
Scientific Studies on the Neuroscience of Learning:
▸ O'Doherty, J. P. (2004, December). Reward representations and reward-related learning in the human brain: Insights from neuroimaging. Current Opinion in Neurobiology, 14:769–776.
▸ Wang, J., Rao., Wetmore, G., Furlan, P., Korczykowski, M., Dinges, D., & Detre, J. (2005). Perfusion functional MRI reveals cerebral blood flow pattern under psychological stress. Proceedings of the National Academy of Sciences. 102(49): 17804–17809.