Genetic Testing and Disease Resources

Neurology Now
November/December 2008
Volume 4(6)
p 38
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Genetic Alliance (geneticalliance.org ; 202-966-8553)

This organization is devoted to promoting optimum health care for people suffering from genetic disorders.

Hereditary Disease Foundation (hdfoundation.org/home ; 212-928-2121)

The HDF offers resources and testing information for families.

Genetics Home Reference (ghr.nlm.nih.gov/)

A guide to understanding genetic conditions, from the National Institutes of Health.

Genetic and Rare Diseases Information Center (genome.gov/10000409 ; 301-402-0911)

The Center provides immediate, virtually round-the-clock access to experienced information specialists who can furnish current and accurate information—in both English and Spanish—about genetic and rare diseases.

Online Genetic Support Group Directory (mostgene.org )

Alphabetic index of genetic disorders with links to associations, support groups, and disease-related resources.

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