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Facing a neurological disorder isn't just difficult for the patient. Caregivers can become so involved with looking after for their loved ones that they neglect themselves. These resources help caregivers maintain good health and a positive attitude.
This Web site from one of the top voluntary health organizations for Alzheimer's disease features an online networking community, a guide to locating care, and data on the latest national conferences and scientific studies.
American Parkinson Disease Association:
A comprehensive source of patient and caregiver information, including news on fundraisers and symposia, physician and services referrals, and educational publications and programs.
Family Caregiver Alliance:
Check here for fact sheets on neurological disorders (such as Parkinson's, frontotemporal dementia, and traumatic brain injury), community resources for caregivers, research studies and clinical trials, and caregiving legislation—in English, Spanish, and Chinese.
National Stroke Association:
This site is home to a wealth of information for medical professionals, EMS providers, stroke survivors, and caregivers. Browse online for details about stroke symptoms, risk factors, prevention, recovery, and emergency stroke-center locations.
by Paul Dash, M.D. and Nicole Villemarette-Pittman, Ph.D.
This comprehensive resource from the American Academy of Neurology was created for people with Alzheimer's and their caregivers.
The 36-Hour Day: A Family Guide to Caring for Persons with Alzheimer Disease, Other Dementias, and Memory Loss in Later Life(4th Edition) by Nancy Mace and Peter Rabins
The new edition lists resources for diagnosing and evaluating dementia, updated legal and financial information, and more on nursing homes and communal living arrangements.
An Uncertain Inheritance, edited by Nell Casey
A collection of insightful essays about the experiences of caregivers. Writers share their pains and humor while relating sibling rivalry, caring for ill parents, choosing institutional care for a spouse, and more.
American Academy of Neurology Foundation
The Brain Matters AAN patient website
National Institute of Neurological Disorders and Stroke
Alzheimer's Disease Education and Referral Center
Alzheimer's Foundation of America
National Ataxia Foundation
Autism Society of America
United Cerebral Palsy
National Spasmodic Dysphonia Association
National Headache Foundation
American Council for Headache Education
The Migraine and Pain Fund
Hereditary Disease Foundation
Huntington's Disease Society of America
Multiple Sclerosis Association of America
Multiple Sclerosis Foundation
National Multiple Sclerosis Society
Myasthenia Gravis Foundation of America
Muscular Dystrophy Association
American Pain Foundation
American Parkinson Disease Association
Michael J. Fox Foundation for Parkinson's Research
National Parkinson Foundation
Parkinson's Disease Foundation
American Stroke Association
National Stroke Association
Brain Injury Association of America
Please look for CLINICAL TRIAL OPPORTUNITIES WITHIN THIS SECTION. For a complete listing, visit ninds.nih.gov/disorders/clinicaltrials_us.htm or clinicaltrials.gov .