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With more than 4.5 million Americans living with Alzheimer's disease today—a number that's expected to jump to 16 million by the year 2050—chances are that a family member or someone you know will need to be evaluated for possible signs of the disease.
The good news is that there are plenty of resources available to provide support for coping with the disease. For more information, visit these websites:
24/7 Helpline alz.org/we_can_help_24_7_helpline.asp 1-800-272-3900
One of many services of the Alzheimer's Association, the 24/7 helpline offers roundthe-clock information and support from clinicians on everything from medications and other treatment options to legal, financial, and living-arrangement decisions.
Eldercare Locator Eldercare.org 1-800-677-116
A public service of the U.S. Administration on Aging, the Eldercare Locator connects older Americans and their caregivers with sources of information on senior services. The services link those who need assistance with state and local area agencies on aging and community-based organizations that serve older adults and their caregivers.
Family Caregiver Alliance caregiver.org 1-800-445-8106
The Family Caregiver Alliance offers support services for those providing longterm care for loved ones with Alzheimer's disease, stroke, traumatic brain injuries, and other debilitating disorders. Its website offers information on public-funded caregiver support programs throughout the U.S., as well as programs funded through the National Family Caregiver Support Program, Aged/Disabled Medicaid waivers, and state-funded programs that either have a caregiver-specific focus, or include a family caregiving component in their service package.
National Association of Professional Geriatric Care Managers Inc. caremanager.org 1-520-881-8008
This nonprofit association of professional geratric care managers—which includes gerontologists, nurses, social workers, or psychologists who specialize in issues related to aging and elder care—works privately with older adults and their families to create a plan of care that meets their needs. Among services, the association's website features a geriatric care manager locator.
National Institute of Neurological Disorders and Stroke ninds.nih.gov
“The Brain Matters” AAN Foundation patient website thebrainmatters.org
American Academy of Neurology Foundation neurofoundation.org
Alzheimer's Association alz.org 1-800-272-3900
Alzheimer's Disease Education and Referral Center alzheimers.org 1-800-438-4380
Alzheimer's Foundation of America alzfdn.org
Autism Society of America autism-society.org 1-800-3AUTISM (1-800-328-8476)
Epilepsy Foundation epilepsyfoundation.org 1-800-332-1000
Sturge-Weber Foundation sturge-weber.com 1-800-627-5482
National Headache Foundation headaches.org 1-888-NHF-5552 (1-888-643-5552)
American Council for Headache Education achenet.org 1-856-423-0258
National Multiple Sclerosis Society nationalmssociety.org 1-800-FIGHT-MS (1-800-344-4867)
Multiple Sclerosis Association of America msaa.com 1-800-532-7667
ALS Association alsa.org 1-800-782-4747
Muscular Dystrophy Association mda.org 1-800-FIGHT-MD (1-800-344-4863)
American Pain Foundation painfoundation.org 1-888-615-PAIN (1-888-615-7246)
Neuropathy Association neuropathy.org 212-692-0662
National Parkinson Foundation parkinson.org 1-800-327-4545
Michael J. Fox Foundation for Parkinson's Research michaeljfox.org 1-800-708-7644
Parkinson's Disease Foundation pdf.org 1-800-457-6676
National Sleep Foundation sleepfoundation.org
American Stroke Association strokeassociation.org 1-888-4-STROKE (1-800-478-7653)
National Stroke Association stroke.org 1-800-STROKES (1-800-787-6563)
Brain Injury Association of America biausa.org 1-800-444-6443
National Spinal Cord Injury Association spinalcord.org 1-800-962-9629
Dance therapy, also referred to as movement therapy, uses movement and music to treat social, emotional, cognitive, and physical problems. Practiced in a variety of settings—from mental health rehabilitation, medical and educational sites, to dance companies and exercise studios—dance therapy has been shown to help with everything from memory enhancement to movement rehabilitation, treating such neurological concerns as Parkinson's disease, autism, dementia, and stroke.
For more information on the dance therapy concepts covered in our Special Report on page 30, contact the following:
American Dance Therapy Association
The American Dance Therapy Association has established standards for dance therapy education, ethics, and practice. The association maintains a registry of dance therapists who meet specific educational and clinical practice standards.
Mark Morris Dance Company Markmorrisdancegroup.org 718-624-8400 Offers weekly dance classes for people with Parkinson's disease
Theory, Research and Practice
By Helen Payne (Routledge, 2006)
This easy-to-read book explains the theories, research, and practices that make dance therapy an effective tool for healing both emotional and movement disorders. The book brings together contributions from experts in the field, who share their working methods and techniques for working with people who have dementia, movement disorders, and emotional and developmental disabilities.