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Outline
Links
RESOURCE CENTRAL
Neurology Now
May/June 2006
Volume 2(3)
p 46-47
HELP FOR ALL NEUROLOGICAL DISORDERS
The Brain Matters
AAN Foundation patients website
www.thebrainmatters.org
American Academy of Neurology Foundation
www.neurofoundation.org
National Institute of Neurological Disorders and Stroke
www.ninds.nih.gov
ALZHEIMER'S
Alzheimer's Association
1-800-272-3900
www.alz.org
Alzheimer's Disease Education & Referral Service
1-800-438-4380
www.alzheimers.org
Alzheimer's Foundation of America
1-866-232-8484
www.alzfdn.org
NEUROPATHY
Neuropathy Association
212-692-0662
www.neuropathy.org
SLEEP DISORDERS
National Sleep Foundation
sleepfoundation.org
202-347-3471
Narcolepsy Network
401-667-2523
www.narcolepsynetwork.org
Accessing Personal Health Records
CapMed
www.CapMedPHR.com
$44.95 to $74.95
Follow Me
www.followme.com
$24.95
MyNIH
www.myhin.org
$24.99
WebMD Health Manager
http://healthmanager.webmd.com
$29.95/year
The Brain in the Computer Age: On Scans and Online
One of the most fascinating places to see today's computer-generated brain images is, fittingly enough, on your computer. Check out the following mind-boggling websites.
www.loni.ucla.edu
The Laboratory of Neuro Imaging at UCLA may target scientists as befits the world-leading research center, but the general public would also find the site's brain maps captivating. The still image sequences in the brain mapping article on page 10 that opens our Special Section are only teasers for the animations in 3D and even 4D on the site's Visualization Showcase. Pioneering time-lapse videos track normal brain development through childhood and changes over a life span. Other videos show disease-specific digital brain atlases, dramatically tracking progression of Alzheimer's, schizophrenia, tumors, etc.
www.med.harvard.edu/AANLIB
The Whole Brain Atlas features many scans of brains in health and in disease. The Harvard Med School site takes you inside the brain from several angles with several imaging techniques, comparing brain slices that pass through a spot of your choosing in different directions. Its easy-to-navigate sections look at the Top 100 Brain Structures and video tours of disease progression.
www.rsna.org
The Radiological Society of North America's web section for patients answers your questions on the many radiological procedures and therapies. Through animated videos such as Radiology 101 and The X-Ray Files, it tells you the purpose of all the various scanning procedures, how they're performed, and so on.
FRAGILE INNOCENCE
A Father's Memoir of His Daughter's Courageous Journey By James Reston Jr. (Harmony, 2006) A renowned author tells the heart-wrenching saga of his daughter Hillary's life after mysterious fevers turned an active toddler into a developmentally disabled child suffering from brain storms harrowing seizures with violent outbursts. He chronicles a two-decade quest to identify her neurological condition while carving out a family life around her mounting needs.
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LIFE AND MIGRAINE
A Film by Edmund Messina, M.D. (2006)
In this documentary, 13 chronic headache sufferers recount their experiences with friends, family, coworkers and medical professionals who often failed to understand their neurological ailment. For decades, I watched people suffer from headache without knowing why, explains Dr. Messina, medical director for the Michigan Headache Treatment Network. This film is a message to seek help.
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IN SEARCH OF MEMORY
The Emergence of a New Science of the Mind By Eric R. Kandel, M.D. (W.W. Norton & Co., 2006) Leave it to the Nobel Prize-winning scientist who discovered how memories stem from conversations between nerve cells to present the mind/brain relationship in an accessible way. And to do so by weaving in his own searing memories of fleeing the Nazis in 1939.
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Careful Planning for the Long Term
Choosing the right long-term care insurer is as important as picking the right policy. Consumer Reports found that just 3 of 47 California such plans were a safe bet for long-term solvency and recommended only buying a policy from a company with at least a B+ rating by one of the top three rating bureaus.
You can check online ratings from A.M. Best (www.ambest.com ), Moody's (www.moodys.com ), and Standard & Poor's (www.standardandpoors.com ).
Long-term-care insurance may be a lousy deal, but right now it's just about the only deal, the report concluded.
National Care Planning Council
www.longtermcarelink.net
Comprehensive long-term care info
American Health Care Association
www.ahca.org
Having Your Say: Advance Directives Guide for Families
Planning Ahead: Consumer Guides to Nursing and Assisted Living Facilities
Helpguide: Rotary Club and Center for Healthy Aging
www.helpguide.org
Life and Health Insurance Foundation for Education
www.life-line.org
AARP
www.aarp.org
Consumer Reports
www.consumerreports.org