Figure. No caption available.
Outline
Links
For more information-from websites to books
Neurology Now
March/April 2006
Volume 2(2)
p 54-55
ALZHEIMER'S
Alzheimer's Association
1-800-272-3900
www.alz.org
Alzheimer's Disease Education & Referral Service
1-800-438-4380
www.alzheimers.org
Alzheimer's Foundation of America
1-866-232-8484
www.alzfdn.org
EPILEPSY
Epilepsy Foundation
1-800-332-1000
www.epilepsyfoundation.org
Epilepsy Bill of Rights
To order the Bill of Rights document as well as a free epilepsy resource kit, call 1-877-637-4448 or visit www.EpilepsyBillofRights.com .
PARKINSON'S
National Parkinson Foundation
1-800-327-4545
www.parkinson.org
Parkinson's Disease Foundation
1-800-457-6676
www.pdf.org
Michael J. Fox Foundation for Parkinson's Research
1-800-708-7644
www.michaeljfox.org
ONLINE HELP FOR ALL NEUROLOGICAL DISORDERS
The Brain Matters
AAN Foundation patients website
www.thebrainmatters.org
American Academy of Neurology Foundation
www.neurofoundation.org
National Institute of Neurological Disorders and Stroke
www.ninds.nih.gov
MEDICATION SAFETY
National Coordinating Council for Medication Error Reporting and Prevention
www.nccmerp.org
USP-ISMP Institute for Safe Medication Practices, Medication Errors Reporting Program
www.ismp.org
215-947-7797
National Patient Safety Foundation
www.npsf.org
413-663-8900
National Council on Patient Information and Education Talk About Prescriptions
www.talkaboutrx.org
FDA's Drug Safety Initiative
www.fda.gov/cder/drugSafety.htm
FDA Center for Drug Evaluation & Research Consumer Education: Ensuring Safe Use of Medicine
www.fda.gov/cder/consumerinfo/ensuring_safe_use.text.html
MEDICARE PART D
GOVERNMENT OFFICES
Centers for Medicare & Medicaid Services
1-800-MEDICARE 1-800-633-4273
www.medicare.gov
Search government's official site for State Health Insurance Assistance Program's list of counselors in each state available to answer questions by phone.
Social Security Administration
1-800-772-1213
www.ssa.gov/prescriptionhelp
Website includes online application for assistance with Part D costs and printable form to appeal plan assignments.
ADVOCACY ORGANIZATIONS
Center for Medicare Advocacy
860-456-7790 (Connecticut headquarters) 202-216-0028 (Washington, D.C., office)
www.medicareadvocacy.org
Offers help for beneficiaries having problems, including a special section on what to do if you can't get medications.
Medicare Rights Center
212-869-3850 (New York headquarters) 202-589-1316 (Washington, D.C., office)
www.medicarerights.org
Operates hotline numbers and welcomes questions from persons with disabilities who are having difficulty with Part D.
Access to Benefits Coalition
202-479-6670
www.accesstobenefits.org
Offers Part D help online or by phone to low-income beneficiaries.
CHAMPION OF PARKINSON'S CAUSES
Muhammad Ali Parkinson Center
602-406-4931
www.maprc.com
Since its 1997 opening, the Muhammad Ali Parkinson Research Center in Phoenix has conducted research and provided treatment, education and support to patients.
The center's immediate care mission: improving quality of life and teaching people with Parkinson's and their families how to live day-to-day with the disease.
In addition to lending his famous name to the Muhammad Ali Parkinson Center at Barrow Neurological Institute, the former heavyweight champion established Ali Care - a program that allows fellow Parkinson's patients to undergo treatment regardless of their ability to pay.
The center has launched the first national registry to compile data on Parkinson's from people with the disease. The goal: improve quality of life by developing the world's largest database of information on the ways people with Parkinson's manage their care and treatment as the disease progresses. The registry will be used to facilitate development of new therapies and healthcare services.
Alzheimer's Companions
THE 36-HOUR DAY: A Family Guide to Caring for Persons with Alzheimer's Disease, Related Dementing Illnesses, and Memory Loss in Later Life
By Nancy L. Mace, M.A., and Peter V. Rabins, M.D., M.P.H. (Warner Books, 2001)
The bible for managing Alzheimer's for a quarter-century, this 512-page paperback is dedicated to everyone who gives a '36-hour day' to the care of a person with a dementing illness.
ALZHEIMER'S DISEASE: An AAN Press Quality of Life Guide
By Paul Dash, M.D., and Nicole Villemarette-Pittman, Ph.D. (American Academy of Neurology Press, 2005)
This book helps patients, their families and caregivers manage Alzheimer's, providing an overview of the latest on causes, diagnosis and treatment.
THE FORGETTING: Alzheimer's: Portrait of an Epidemic
By David Shenk (Anchor, 2003)
The author weaves science and human drama to explore the disease he defines as death by a thousand subtractions.
THE LONG GOODBYE By Patti Davis (Plume, 2005)
Ronald Reagan's daughter weaves childhood memories with an intimate look at her father's descent into Alzheimer's.
Figure. No caption available.
MAYO CLINIC ON ALZHEIMER'S DISEASE: Practical Answers on Memory Loss, Aging, Research, Treatment and Caregiving
Edited by Ronald Petersen, M.D., Ph.D. (Mayo Clinic, 2002)
TALKING TO ALZHEIMER'S DISEASE: Simple Ways to Connect When You Visit with a Family Member or Friend
By Claudia J. Strauss (New Harbinger Publications, 2002)
AGING WITH GRACE: What the Nun Study Teaches Us about Leading Longer, Healthier, and More Meaningful Lives
By David Snowdon, Ph.D. (Bantam Books, 2002)