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RESOURCE CENTRAL: The Bookshelf: Multiple Sclerosis
Neurology Now
September/October 2010
Volume 6(5)
pp 42,44–46
Educating yourself about your condition is an important part of managing that condition. All books are available through Amazon.com , BarnesandNoble.com , Borders.com , IndieBound.com , and through local retailers.
The Autoimmune Epidemic: Bodies Gone Haywire in a World Out of Balance— and the Cutting-Edge Science That Promises Hope, by Donna Jackson Nakazawa, foreword by Douglas Kerr, M.D., Ph.D., director of the Johns Hopkins Transverse Myelitis Center (isbn: 0743277759; 2008; 352 pages; $25
Blindsided: Lifting a Life Above Illness: A Reluctant Memoir, by Richard Cohen (isbn: 0060014091; 2004; 256 pages; $13.95
Complementary and Alternative Medicine and Multiple Sclerosis, by Allen C. Bowling, M.D., Ph.D. (isbn: 1932603549; 2006; 275 pages; $24.95
Mental Sharpening Stones: Manage the Cognitive Challenges of Multiple Sclerosis, by Jeffrey N. Gingold (isbn: 1932603654; 2008; 272 pages; $18.95
Multiple Sclerosis Manifesto: Action to Take, Principles to Live By, by Julie Stachowiak, Ph.D. (isbn: 1932603441; 2010; 360 pages; $19.95
Multiple Sclerosis: New Hope and Practical Advice for People With MS and Their Families, by Louis Rosner, M.D., and Shelley Ross (isbn: 1416550992; 2008; 352 pages; $15
Multiple Sclerosis: Your Legal Rights, by Sara Perkins and Lanny E. Perkins (isbn: 1888799315; 1999; 240 pages; $24.95
My Story: A Photographic Essay on Life with Multiple Sclerosis, by Amelia Davis (isbn: 1932603018; 2004; 128 pages; $19.95
Primary Progressive Multiple Sclerosis: What You Need to Know, by Nancy J. Holland, Ed.D., Jack S. Burks, M.D., and Diana M. Schneider, Ph.D. (isbn: 0982321902; 2009; 160 pages; $14.95
When the Diagnosis is Multiple Sclerosis: Help, Hope, and Insights From an Affected Physician, by Kym Orsetti Furney, M.D. (isbn: 0275994686; 2007; 144 pages; $39.95
Assistance Directory
For a full listing of patient organizations, go to neurologynow.com
HELP FOR ALL NEUROLOGICAL DISORDERS
American Academy of Neurology Web site aan.com/patients 1-800-879-1960
CaringBridge® (free, personalized Web sites to support your health journey) Caringbridge.org 651-452-7940
National Institute of Neurological Disorders and Stroke ninds.nih.gov
Well Spouse Association wellspouse.org 1-800-838-0879
ALZHEIMER'S DISEASE
Alzheimer's Association alz.org 1-800-272-3900
Alzheimer's Disease Education and Referral Center alzheimers.org 1-800-438-4380
Alzheimer's Foundation of America alzfdn.org 1-866-232-8484
Association for Frontotemporal Dementias FTD-Picks.org 1-866-507-7222
AUTISM
Autism Society of America autism-society.org 1-800-3AUTISM (1-800-328-8476)
Autism Speaks, Inc. autismspeaks.org 212-252-8584
Global and Regional Asperger Syndrome Partnership grasp.org 1-888-474-7277
BRAIN TUMOR
American Brain Tumor Association abta.org 1-800-886-2282
National Brain Tumor Society Braintumor.org 1-800-934-2873
CEREBRAL PALSY
United Cerebral Palsy ucp.org 1-800-872-5827
DEPRESSION AND MENTAL DISORDERS
National Alliance on Mental Illness nami.org 1-800-950-NAMI (6264)
DYSTONIA
American Dystonia Society Dystonia.us 310-237-5478
Benign Essential Blepharospasm Research Foundation blepharospasm.org 409-832-0788
Dystonia Foundation dystonia-foundation.org 1-800-377-DYST (1-800-377-3978)
National Spasmodic Dysphonia Association dysphonia.org 1-800-795-6732
Spasmodic Torticollis spasmodictorticollis.org 1-888-445-4588
EPILEPSY AND SEIZURES
Citizens United for Research in Epilepsy (CURE) CUREepilepsy.org 312-255-1801
Epilepsy Foundation epilepsyfoundation.org 1-800-332-1000
HEADACHE / MIGRAINE
American Headache Society Committee for Headache Education (ACHE) achenet.org 856-423-0043
Migraine Research Foundation migraineresearchfoundation.org 212-249-5402
National Headache Foundation headaches.org 888-NHF-5552 (888-643-5552)
HUNTINGTON'S DISEASE
Hereditary Disease Foundation hdfoundation.org 212-928-2121
Huntington's Disease Society of America hdsa.org 1-800-345-HDSA (1-800-345-4372)
HYDROCEPHALUS
Hydrocephalus Association hydroassoc.org 1-888-598-3789
National Hydrocephalus Foundation nhfonline.org 1-888-857-3434
MULTIPLE SCLEROSIS
MSFriends msfriends.org 1–877-MSFRIENDS
MSWorld msworld.org
Multiple Sclerosis Association of America msassociation.org , 1-800-532-7667
Multiple Sclerosis Foundation msfocus.org 1-800-225-6495
National Multiple Sclerosis Society nationalmssociety.org 1-800-FIGHT-MS (1-800-344-4867)
MYASTHENIA GRAVIS
Myasthenia Gravis Foundation of America myasthenia.org 1-800-541-5454
NEUROMUSCULAR DISEASES
ALS Association alsa.org 1-800-782-4747
Charcot-Marie-Tooth Association charcot-marie-tooth.org 610-499-9264 1-800-606-CMTA (2682)
Kennedy's Disease Association kennedysdisease.org 559-658-5950
Moebius Syndrome Foundation moebiussyndrome.com 1-660-834-3406
Muscular Dystrophy Association mda.org 1-800-FIGHT-MD (1-800-344-4863)
Neuropathy Association neuropathy.org 212-692-0662
Spastic Paraplegia Foundation, Inc. sp-foundation.org 1-877-773-4483
PARKINSON'S DISEASE & MOVEMENT DISORDERS
American Parkinson Disease Association apdaparkinson.org 1-800-223-2732
Foundation for PSP, CBD and Related Brain Diseases curepsp.org 1-800-457-4777
International Essential Tremor Foundation essentialtremor.org 1-888-387-3667
Lewy Body Dementia Association lbda.org 404-935-6444
Michael J. Fox Foundation for Parkinson's Research michaeljfox.org 1-800-708-7644
National Ataxia Foundation ataxia.org 763-553-0020
National Parkinson Foundation parkinson.org 1-800-327-4545
Parkinson's Disease Foundation pdf.org 1-800-457-6676
The Parkinson's Institute and Clinical Center thepi.org 1-800-655-2273
SLEEP
National Sleep Foundation sleepfoundation.org 202-347-3471
STROKE
American Stroke Association: A Division of American Heart Association strokeassociation.org 1-888-4STROKE (478–7653)
National Stroke Association stroke.org 1-800-STROKES (787–6537)
TOURETTE SYNDROME
Tourette Syndrome Association tsa-usa.org 718-224-2999
TRAUMA
Brain Injury Association of America biausa.org 1-800-444-6443