The National Amyotrophic Lateral Sclerosis (ALS) Registry is a groundbreaking effort in the fight against ALS. Through this registry, the federal Agency for Toxic Substances and Disease Registry will gather information from patients across the nation to learn more about the number of people with the disease and any shared traits or experiences that could lead to clues about the causes of ALS. The more patients who enroll in the registry, the more accurate the registry data will be.
People living with ALS can visit www.cdc.gov/als to participate in the registry through a secure Web portal. They will be asked questions about their health, occupational and family histories, and other possible risk factors.
The registry web pages also provide resources for clinicians and researchers including:
You can also download free informational materials for your patients.